Xie Y, Bowe B, Mokdad AH, Xian H, Yan Y, Li T, Maddukuri G, Tsai C-Y, Floyd T, Al-Aly Z (2018) Analysis of the Global Burden of Disease study highlights the global, regional, and national trends of chronic kidney disease epidemiology from 1990 to 2016. Kidney Int 94:567–581. https://doi.org/10.1016/j.kint.2018.04.011
Levin A, Tonelli M, Bonventre J, Coresh J, Donner J-A, Fogo AB, Fox C, Gansevoort R et al (2017) Global kidney health 2017 and beyond: a roadmap for closing gaps in care, research, and policy. Lancet 390:1888–1917. https://doi.org/10.1016/S0140-6736(17)30788-2
Hill NR, Fatoba ST, Oke JL, Hirst JA, O’Callaghan CA, Lasserson DS, Hobbs FDR (2016) Global prevalence of chronic kidney disease: a systematic review and meta-analysis. PLoS One 11:e0158765. https://doi.org/10.1371/journal.pone.0158765
Article PubMed PubMed Central Google Scholar
Bello AK, Levin A, Tonelli M, Okpechi IG, Feehally J, Harris D, Jindal K, Salako B et al (2017) Assessment of global kidney health care status. JAMA 317:1864–1881. https://doi.org/10.1001/jama.2017.404
Article PubMed PubMed Central Google Scholar
Liyanage T, Ninomiya T, Jha V, Neal B, Patrice HM, Okpechi I, Zhao M-H, Lv J et al (2015) Worldwide access to treatment for end-stage kidney disease: a systematic review. Lancet 385:1975–1982. https://doi.org/10.1016/S0140-6736(14)61601-9
Luyckx VA, Tonelli M, Stanifer JW (2018) The global burden of kidney disease and the sustainable development goals. Bull World Health Organ 96:414-422D. https://doi.org/10.2471/FBLT.17.206441
Article PubMed PubMed Central Google Scholar
Instituto Nacional de Estadística (2019) Estimaciones y proyecciones de población a largo plazo, 1950–2050. https://www.ine.gob.gt/proyecciones/. Accessed 16 Apr 2024
Sam-Colop B (2020) Prevalencia y mortalidad de enfermedad renal crónica en Guatemala (2008–2018). Ciencia, Tecnología y Salud 7(1). https://doi.org/10.36829/63CTS.v7i1.881
Ying M, Shao X, Qin H, Yin P, Lin Y, Wu J, Ren J, Zheng Y (2024) Disease burden and epidemiological trends of chronic kidney disease at the global, regional, national levels from 1990 to 2019. Nephron 148:113–123. https://doi.org/10.1159/000534071
Cerón A, Fort MP, Morine CM, Lou-Meda R (2014) Chronic kidney disease among children in Guatemala. Rev Panam Salud Publica 36:376–382
Rivera-Alvarez A, Us-Rojas J, Ramay BM, Chocó A, Cerón A, Bonilla-Félix M, Lou-Meda R (2024) Access, availability and affordability of medications for children with Advanced Chronic Kidney Disease in Guatemala. Rev Cient 32(1)
Tong A, Lowe A, Sainsbury P, Craig JC (2008) Experiences of parents who have children with chronic kidney disease: a systematic review of qualitative studies. Pediatrics 121:349–360. https://doi.org/10.1542/peds.2006-3470
Wee LX, Tan PST, Chen H-C (2022) Experiences and needs of families caring for children and adolescents with chronic kidney disease: a meta-synthesis. J Pediatr Nurs 63:52–63. https://doi.org/10.1016/j.pedn.2021.12.028
Aier A, Pais P, Raman V (2022) Psychological aspects in children and parents of children with chronic kidney disease and their families. Clin Exp Pediatr 65:222–229. https://doi.org/10.3345/cep.2021.01004
Hart LC, van Tilburg MAL, Campbell R Jr, Faldowski RA, Nazareth M, Ndugga M, Coltrane C, de Ferris MD (2019) Association of youth health care transition readiness to role overload among parents of children with chronic illness. Child Care Health Dev 45:577–584. https://doi.org/10.1111/cch.12683
Ong ZH, Ng CH, Tok PL, Kiew PJX, Huso Y, Shorey S, Ng YPM (2021) Sources of distress experienced by parents of children with chronic kidney disease on dialysis: a qualitative systematic review. J Pediatr Nurs 57:11–17. https://doi.org/10.1016/j.pedn.2020.10.018
Postavaru G-I, Swaby H, Swaby R (2021) A meta-ethnographic study of fathers’ experiences of caring for a child with a life-limiting illness. Palliat Med 35:261–279. https://doi.org/10.1177/0269216320979153
Piotrowski C, Giesbrecht A, Goldberg A, Judd D, Rempel R, Strong J, Weavers M (2022) A scoping review of the experiences and well-being of siblings of children with chronic kidney disease: implications for practice and research. Pediatr Nephrol 37:3019–3029. https://doi.org/10.1007/s00467-022-05559-5
Article PubMed PubMed Central Google Scholar
McKenna AM, Keating LE, Vigneux A, Stevens S, Williams A, Geary DF (2006) Quality of life in children with chronic kidney disease: patient and caregiver assessments. Nephrol Dial Transplant 21:1899–1905. https://doi.org/10.1093/ndt/gfl091
Chavers BM, Li S, Collins AJ, Herzog CA (2002) Cardiovascular disease in pediatric chronic dialysis patients. Kidney Int 62:648–653. https://doi.org/10.1046/j.1523-1755.2002.00472.x
Mitsnefes M, Ho P-L, McEnery PT (2003) Hypertension and progression of chronic renal insufficiency in children: a report of the North American Pediatric Renal Transplant Cooperative Study (NAPRTCS). J Am Soc Nephrol 14:2618–2622. https://doi.org/10.1097/01.ASN.0000089565.04535.4B
Garralda ME, Jameson RA, Reynolds JM, Postlethwaite RJ (1988) Psychiatric adjustment in children with chronic renal failure. J Child Psychol Psychiatry 29:79–90. https://doi.org/10.1111/j.1469-7610.1988.tb00691.x
Soliday E (2000) Psychosocial adjustment in children with kidney disease. J Pediatr Psychol 25:93–103. https://doi.org/10.1093/jpepsy/25.2.93
McDonald SP, Craig JC (2004) Long-term survival of children with end-stage renal disease. N Engl J Med 350:2654–2662. https://doi.org/10.1056/NEJMoa031643
Furth SL (2005) Growth and nutrition in children with chronic kidney disease. Adv Chronic Kidney Dis 12:366–371. https://doi.org/10.1053/j.ackd.2005.07.007
Groothoff JW, Gruppen MP, Offringa M, Hutten J, Lilien MR, van de Kar NJ, Wolff ED, Davin JC, Heymans HSA (2002) Mortality and causes of death of end-stage renal disease in children: a Dutch cohort study. Kidney Int 61:621–629. https://doi.org/10.1046/j.1523-1755.2002.00156.x
Pruette CS, Ranch D, Shih WV, Ferris MD (2022) Health care transition in adolescents and young adults with chronic kidney disease: focus on the individual and family support systems. Adv Chronic Kidney Dis 29:318–326. https://doi.org/10.1053/j.ackd.2022.02.004
Rupp S, Fair C, Korycinski H, Díaz-González de Ferris M (2021) “It’s what I have, it’s not who I am”: a qualitative study of social support in education/employment settings and transition readiness of young adults with ESRD. Int J Environ Res Pub Health 18:6596. https://doi.org/10.3390/ijerph18126596
Díaz-González de Ferris ME, Díaz-González de Martínez ML, Díaz-González de Velázquez AM, Díaz-González Borja A, Díaz-González Borja A, Filler G, Alvarez-Elías AC, Díaz-González Borja V (2021) An interdisciplinary approach to optimize the care of transitioning adolescents and young adults with chronic kidney disease. Blood Purif 50:684–695. https://doi.org/10.1159/000513520
Wang C, Burris MA (1997) Photovoice: concept, methodology, and use for participatory needs assessment. Health Educ Behav 24:369–387. https://doi.org/10.1177/109019819702400309
Seitz CM, Orsini MM (2022) Thirty years of implementing the photovoice method: insights from a review of reviews. Health Promot Pract 23:281–288. https://doi.org/10.1177/15248399211053878
Halvorsrud K, Eylem O, Mooney R, Haarmans M, Bhui K (2022) Identifying evidence of the effectiveness of photovoice: a systematic review and meta-analysis of the international healthcare literature. J Public Health 44:704–712. https://doi.org/10.1093/pubmed/fdab074
Fountain S, Hale R, Spencer N, Morgan J, James L, Stewart MK (2021) A 10-year systematic review of photovoice projects with youth in the United States. Health Promot Pract 22:767–777. https://doi.org/10.1177/15248399211019978
Budig K, Diez J, Conde P, S
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