Kidney disease. A global health priority. Nat Rev Nephrol Jul. 2024;20(7):421–3. https://doi.org/10.1038/s41581-024-00829-x.

Article  Google Scholar 

Tonelli M, Wiebe N, Knoll G, et al. Systematic review: kidney transplantation compared with Dialysis in clinically relevant outcomes. Am J Transplant. 2011;11(10):2093–109. https://doi.org/10.1111/j.1600-6143.2011.03686.x.

Article  CAS  PubMed  Google Scholar 

Gilbert J, Lovibond K, Mooney A, Dudley J. Renal replacement therapy: summary of NICE guidance. BMJ. 2018;363:k4303. https://doi.org/10.1136/bmj.k4303.

Article  PubMed  Google Scholar 

Ghadami A, Memarian R, Mohamadi E, Abdoli S. Patients’ experiences from their received education about the process of kidney transplant: A qualitative study. Iran J Nurs Midwifery Res. 2012;17(2):S157–64.

PubMed  PubMed Central  Google Scholar 

Williams A, Low JK, Manias E, Crawford K. The transplant team’s support of kidney transplant recipients to take their prescribed medications: a collective responsibility. J Clin Nurs Aug. 2016;25(15–16):2251–61. https://doi.org/10.1111/jocn.13267.

Article  Google Scholar 

Chadban SJ, Ahn C, Axelrod DA, et al. Summary of the kidney disease: improving global outcomes (KDIGO) clinical practice guideline on the evaluation and management of candidates for kidney transplantation. Transplantation. 2020;104(4):708–14. https://doi.org/10.1097/tp.0000000000003137.

Article  PubMed  PubMed Central  Google Scholar 

Waterman AD, Robbins ML, Peipert JD. Educating prospective kidney transplant recipients and living donors about living donation: practical and theoretical recommendations for increasing living donation rates. Curr Transplantation Rep. 2016;3(1):1–9. https://doi.org/10.1007/s40472-016-0090-0.

Article  Google Scholar 

Mahdizadeh A, Oskouie F, Khanjari S, Parvizy S. The need for renovating patient education in kidney transplantation: A qualitative study. J Educ Health Promot. 2020;9:154. https://doi.org/10.4103/jehp.jehp_574_19.

Article  PubMed  PubMed Central  Google Scholar 

Yang FC, Chen HM, Huang CM, Hsieh PL, Wang SS, Chen CM. The difficulties and needs of organ transplant recipients during postoperative care at home: A systematic review. Int J Environ Res Public Health Aug. 2020;11(16). https://doi.org/10.3390/ijerph17165798.

Wu DA, Robb ML, Watson CJE, et al. Barriers to living donor kidney transplantation in the united Kingdom: a National observational study. Nephrol Dialysis Transplantation. 2017;32(5):890–900. https://doi.org/10.1093/ndt/gfx036.

Article  CAS  Google Scholar 

Winterbottom A, Stoves J, Ahmed S, Ahmed A, Daga S. Patient information about living donor kidney transplantation across UK renal units: A critical review. J Ren Care Mar. 2023;49(1):45–55. https://doi.org/10.1111/jorc.12404.

Article  Google Scholar 

Wittink H, Oosterhaven J. Patient education and health literacy. Musculoskelet Sci Pract Dec. 2018;38:120–7. https://doi.org/10.1016/j.msksp.2018.06.004.

Article  CAS  Google Scholar 

Chang M, Kelly AE. Patient education: addressing cultural diversity and health literacy issues. Urol Nurs. 2007;27(5):411–7.

PubMed  Google Scholar 

Kucirka LM, Grams ME, Balhara KS, Jaar BG, Segev DL. Disparities in provision of transplant information affect access to kidney transplantation. Am J Transpl Feb. 2012;12(2):351–7. https://doi.org/10.1111/j.1600-6143.2011.03865.x.

Article  CAS  Google Scholar 

Gordon EJ. Living organ donors’ stories: (unmet) expectations about informed consent, outcomes, and care. Narrat Inq Bioeth Spring. 2012;2(1):1–6. https://doi.org/10.1353/nib.2012.0001.

Article  Google Scholar 

Timmerman L, Ismail SY, Luchtenburg AE, et al. Exploring knowledge about dialysis, transplantation, and living donation among patients and their living kidney donors. Int J Behav Med Oct. 2015;22(5):580–9. https://doi.org/10.1007/s12529-015-9461-7.

Article  Google Scholar 

Chatterjee A, Strong G, Meinert E, Milne-Ives M, Halkes M, Wyatt-Haines E. The use of video for patient information and education: A scoping review of the variability and effectiveness of interventions. Patient Educ Couns Sep. 2021;104(9):2189–99. https://doi.org/10.1016/j.pec.2021.02.009.

Article  Google Scholar 

Young A, Orchanian-Cheff A, Chan CT, Wald R, Ong SW. Video-Based telemedicine for kidney disease care: A scoping review. Clin J Am Soc Nephrol Dec. 2021;16(12):1813–23. https://doi.org/10.2215/CJN.06660521.

Article  CAS  Google Scholar 

Chisholm-Burns MA, Spivey CA, Pickett LR. Health literacy in solid-organ transplantation: a model to improve Understanding. Patient Prefer Adherence. 2018;12:2325–38. https://doi.org/10.2147/PPA.S183092.

Article  PubMed  PubMed Central  Google Scholar 

Kayler LK, Keller MM, Breckenridge B, Feeley TH, Suboh J, Tumiel-Berhalter L. Preliminary feasibility of animated video education designed to empower patients’ referral to kidney transplantation. Clin Transplant. 2022;37:e14838. https://doi.org/10.1111/ctr.14838.

Article  PubMed  PubMed Central  Google Scholar 

Kayler LK, Seibert RE, Dolph BA, et al. Video education to facilitate patient outreach about living kidney donation: A proof of concept. Clin Transplant. 2021;35:e14477. https://doi.org/10.1111/ctr.14477.

Article  PubMed  Google Scholar 

Kayler LK, Dolph B, Ranahan M, Keller M, Cadzow R, Feeley TH. Kidney transplant evaluation and listing: development and preliminary evaluation of multimedia education for patients. Annals Od Transplantation Mar 2. 2021;26:e929839. https://doi.org/10.12659/AOT.929839.

Article  Google Scholar 

Kayler LK, Dolph BA, Cleveland CN, Keller MM, Feeley TH. Educational animations to inform transplant candidates about deceased donor kidney options: an efficacy randomized trial. Transpl Direct Jul. 2020;6(7):e575. https://doi.org/10.1097/TXD.0000000000001026.

Article  Google Scholar 

Kayler LK, Keller MM, Crenesse-Cozien N, Dolph B, Cadzow R, Feeley TH. Development and preliminary evaluation of IlearnKAS: an animated video about kidney allocation to support transplant decision‐making. Clin Transplant. 2019;33(8):e13638. https://doi.org/10.1111/ctr.13638.

Article  PubMed  Google Scholar 

Rosaasen N, Mainra R, Kukha-Bryson A, et al. Development of a patient-centered video series to improve education before kidney transplantation. Patient Educ Couns Sep. 2018;101(9):1624–9. https://doi.org/10.1016/j.pec.2018.04.014.

Article  Google Scholar 

Mansell H, Rosaasen N, Wichart J, et al. A randomized controlled trial of a pretransplant educational intervention in kidney patients. Transpl Direct Oct. 2021;7(10):e753. https://doi.org/10.1097/TXD.0000000000001202.

Article  Google Scholar 

NI OD. Living kidney donation. Accessed May 31. 2023. https://www.organdonationni.info/living-donation/living-kidney-donation

Barnieh L, Collister D, Manns B, et al. A scoping review for strategies to increase living kidney donation. Clin J Am Soc Nephrol Sep. 2017;7(9):1518–27. https://doi.org/10.2215/CJN.01470217.

Article  Google Scholar 

Garritty C, Gartlehner G, Nussbaumer-Streit B, et al. Cochrane rapid reviews methods group offers evidence-informed guidance to conduct rapid reviews. J Clin Epidemiol Feb. 2021;130:13–22. https://doi.org/10.1016/j.jclinepi.2020.10.007.

Article  Google Scholar 

Garritty C, Hamel C, Trivella M, et al. Updated recommendations for the Cochrane rapid review methods guidance for rapid reviews of effectiveness. BMJ Feb 6. 2024;384:e076335. https://doi.org/10.1136/bmj-2023-076335.

Article  Google Scholar 

Page MJ, McKenzie JE, Bossuyt PM, et al. The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ Mar. 2021;29:372:n71. https://doi.org/10.1136/bmj.n71.

Article  Google Scholar 

Stevens A, Garritty C, Hersi M, Moher D, Developing. PRISMA-RR, a reporting guideline for rapid reviews of primary studies (Protocol). 2018.

Group TWB. World Bank Country and Lending Groups. Accessed December 1, 2023. https://datahelpdesk.worldbank.org/knowledgebase/articles/906519-world-bank-country-and-lending-groups

Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Nternational J Qual Health Care. 2007;19(6):349–57. https://doi.org/10.1093/intqhc/mzm042.

Article  Google Scholar 

Noyes J, Lewin S. Chapter 5: extracting qualitative evidence. In: Noyes J, Booth A, Hannes K, et al. editors. Supplementary guidance for inclusion of qualitative research in Cochrane systematic reviews of interventions. Cochrane Collaboration Qualitative Methods Group; 2011.

Campbell F, Weeks L, Booth A, Kaunelis D, Smith A. A scoping review found increasing examples of rapid qualitative evidence syntheses and no methodological guidance. J Clin Epidemiol., Gossner JD. Deductive Qualitative Analysis: Evaluating, Expanding, and Refining Theory. Int J Qual Methods. 2024;23:1–12. https://doi.org/10.1177/16094069241244856.

Martin P. Living donor kidney transplantation: preferences and concerns amongst patients waiting for transplantation in new Zealand. J Health Serv Res Policy Jul. 2014;19(3):138–44. https://doi.org/10.1177/1355819613514957.

Article  Google Scholar 

Devitt J, Anderson K, Cunningham J, Preece C, Snelling P, Cass A. Difficult conversations: Australian Indigenous patients’ views on kidney transplantation. BMC Nephrol Oct. 2017;11(1):310. https://doi.org/10.1186/s12882-017-0726-z.

Article  Google Scholar 

Ismail SY, Claassens L, Luchtenburg AE, et al. Living donor kidney transplantation among ethnic minorities in the Netherlands: a model for breaking the hurdles. Patient Educ Couns Jan. 2013;90(1):118–24. https://doi.org/10.1016/j.pec.2012.08.004.

Article