Development of a complex palliative care intervention for patients with heart failure and their family carers: a theory of change approach

Tsao CW, Lyass A, Enserro D, Larson MG, Ho JE, Kizer JR, et al. Temporal trends in the incidence of and mortality associated with heart failure with preserved and reduced ejection fraction. JACC Heart Fail. 2018;6(8):678–85.

Article  PubMed  PubMed Central  Google Scholar 

Braunwald E. The war against heart failure: the lancet lecture. Lancet. 2015;385(9970):812–24.

Article  PubMed  Google Scholar 

Bekelman DB, Rumsfeld JS, Havranek EP, Yamashita TE, Hutt E, Gottlieb SH, et al. Symptom burden, depression, and spiritual well-being: a comparison of heart failure and advanced cancer patients. J Gen Intern Med. 2009;24(5):592–8.

Article  PubMed  PubMed Central  Google Scholar 

Janssen DJ, Schols JM, Wouters EF, Spruit MA. One-year stability of care dependency in patients with advanced chronic organ failure. J Am Med Dir Assoc. 2014;15(2):127–32.

Article  PubMed  Google Scholar 

Nicholas Dionne-Odom J, Hooker SA, Bekelman D, Ejem D, McGhan G, Kitko L, et al. Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review. Heart Fail Rev. 2017;22(5):543–57.

Article  CAS  PubMed  Google Scholar 

Remawi BN, Gadoud A, Preston N. The experiences of patients with advanced heart failure, family carers, and health professionals with palliative care services: a secondary reflexive thematic analysis of longitudinal interview data. BMC Palliat Care. 2023;22(1):115.

Article  PubMed  PubMed Central  Google Scholar 

Quill TE, Abernethy AP. Generalist plus specialist palliative care - creating a more sustainable model. N Engl J Med. 2013;368(13):1173–5.

Article  CAS  PubMed  Google Scholar 

Gelfman LP, Kavalieratos D, Teuteberg WG, Lala A, Goldstein NE. Primary palliative care for heart failure: what is it? How do we implement it? Heart Fail Rev. 2017;22(5):611–20.

Article  PubMed  PubMed Central  Google Scholar 

Fernandes Pedro J, Reis-Pina P. Palliative care in patients with advanced heart failure: a systematic review. Acta Med Port. 2022;35(2):111–8.

Article  PubMed  Google Scholar 

Sobanski PZ, Alt-Epping B, Currow DC, Goodlin SJ, Grodzicki T, Hogg K, et al. Palliative care for people living with heart failure: European association for palliative care task force expert position statement. Cardiovasc Res. 2020;116(1):12–27.

Article  CAS  PubMed  Google Scholar 

Braun LT, Grady KL, Kutner JS, Adler E, Berlinger N, Boss R, et al. Palliative care and cardiovascular disease and stroke: a policy statement from the American heart association/american stroke association. Circulation. 2016;134(11):e198–225.

Article  PubMed  Google Scholar 

Hill L, Prager Geller T, Baruah R, Beattie JM, Boyne J, de Stoutz N, et al. Integration of a palliative approach into heart failure care: a European society of cardiology heart failure association position paper. Eur J Heart Fail. 2020;22(12):2327–39.

Article  PubMed  Google Scholar 

McDonagh TA, Metra M, Adamo M, Gardner RS, Baumbach A, Böhm M, et al. 2021 ESC guidelines for the diagnosis and treatment of acute and chronic heart failure. Eur Heart J. 2021;42(36):3599–726.

Article  CAS  PubMed  Google Scholar 

Gadoud A, Kane E, Macleod U, Ansell P, Oliver S, Johnson M. Palliative care among heart failure patients in primary care: a comparison to cancer patients using english family practice data. PLoS ONE. 2014;9(11):e113188.

Article  PubMed  PubMed Central  Google Scholar 

Gadoud A, Kane E, Oliver SE, Johnson MJ, Macleod U, Allgar V. Palliative care for non-cancer conditions in primary care: a time trend analysis in the UK (2009–2014). BMJ support palliat care. 2020 Jan 13:bmjspcare-2019-001833. https://doi.org/10.1136/bmjspcare-2019-001833. Epub ahead of print.

Chow J, Senderovich H. It’s time to talk: challenges in providing integrated palliative care in advanced congestive heart failure. A narrative review. Curr Cardiol Rev. 2018;14(2):128–37.

Article  PubMed  PubMed Central  Google Scholar 

Sahlollbey N, Lee CK, Shirin A, Joseph P. The impact of palliative care on clinical and patient-centred outcomes in patients with advanced heart failure: a systematic review of randomized controlled trials. Eur J Heart Fail. 2020;22(12):2340–6.

Article  PubMed  Google Scholar 

Ingle MP, Check D, Slack DH, Cross SH, Ernecoff NC, Matlock DD, et al. Use of theoretical frameworks in the development and testing of palliative care interventions. J Pain Symptom Manage. 2022;63(3):e271–80.

Article  PubMed  Google Scholar 

Bannon M, Ernecoff NC, Dionne-Odom JN, Zimmermann C, Corbelli J, Klein-Fedyshin M, et al. Comparison of palliative care interventions for cancer versus heart failure patients: a secondary analysis of a systematic review. J Palliat Med. 2019;22(8):966–9.

Article  PubMed  PubMed Central  Google Scholar 

Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M. Developing and evaluating complex interventions: the new medical research Council guidance. BMJ. 2008;337:a1655.

Article  PubMed  PubMed Central  Google Scholar 

Hoffmann TC, Glasziou PP, Boutron I, Milne R, Perera R, Moher D, et al. Better reporting of interventions: template for intervention description and replication (TIDieR) checklist and guide. BMJ. 2014;348:g1687.

Article  PubMed  Google Scholar 

Bleijenberg N, de Man-van Ginkel JM, Trappenburg JC, Ettema RG, Sino CG, Heim N, et al. Increasing value and reducing waste by optimizing the development of complex interventions: enriching the development phase of the medical research Council (MRC) framework. Int J Nurs Stud. 2018;79:86–93.

Article  PubMed  Google Scholar 

Higginson IJ, Evans CJ, Grande G, Preston N, Morgan M, McCrone P, et al. Evaluating complex interventions in end of life care: the morecare statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews. BMC Med. 2013;11:111.

Article  PubMed  PubMed Central  Google Scholar 

De Silva MJ, Breuer E, Lee L, Asher L, Chowdhary N, Lund C, et al. Theory of change: a theory-driven approach to enhance the medical research Council’s framework for complex interventions. Trials. 2014;15:267.

Article  PubMed  PubMed Central  Google Scholar 

Gilissen J, Pivodic L, Gastmans C, Vander Stichele R, Deliens L, Breuer E, et al. How to achieve the desired outcomes of advance care planning in nursing homes: a theory of change. BMC Geriatr. 2018;18(1):47.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Lin CP, Evans CJ, Koffman J, Chen PJ, Hou MF, Harding R. Feasibility and acceptability of a culturally adapted advance care planning intervention for people living with advanced cancer and their families: a mixed methods study. Palliat Med. 2020;34(5):651–66.

Article  PubMed  Google Scholar 

de Nooijer K, Van Den Pivodic L, Pype P, Van den Evans C. Timely short-term specialized palliative care service intervention for older people with frailty and their family carers in primary care: development and modelling of the frailty + intervention using theory of change. Palliat Med. 2021;35(10):1961–74.

Article  PubMed  PubMed Central  Google Scholar 

Rao SR, Salins N, Remawi BN, Rao S, Shanbaug V, Arjun NR, et al. Stakeholder engagement as a strategy to enhance palliative care involvement in intensive care units: a theory of change approach. J Crit Care. 2023;75:154244.

Article  PubMed  Google Scholar 

Simpson J, Remawi BN, Potts K, Blackmore T, French M, Haydock K, et al. Improving paramedic responses for patients dying at home: a theory of change-based approach. BMC Emerg Med. 2023;23(1):81.

Article  PubMed  PubMed Central  Google Scholar 

Anderson AA. The community builder’s approach to theory of change: a practical guide to theory development. New York: Aspen Institute Roundtable on Community Change; 2006.

Google Scholar 

De Silva M, Lee L, Ryan G. Using theory of change in the development, implementation and evaluation of complex health interventions: a practical guide. London: Centre for Global Mental Health and the Mental Health Innovation Network; 2014.

Google Scholar 

Remawi BN, Gadoud A, Murphy IMJ, Preston N. Palliative care needs-assessment and measurement tools used in patients with heart failure: a systematic mixed-studies review with narrative synthesis. Heart Fail Rev. 2021;26(1):137–55.

Article  PubMed  Google Scholar 

van der Eerden M, Csikos A, Busa C, Hughes S, Radbruch L, Menten J, et al. Experiences of patients, family and professional caregivers with integrated palliative care in Europe: protocol for an international, multicenter, prospective, mixed method study. BMC Palliat Care. 2014;13(1):52.

Article 

Comments (0)

No login
gif