Salerno AEMD, Weinstein AMD, Hanevold CMD (2016) American Society of Pediatric Nephrology position paper: standard resources required for a pediatric nephrology practice. J Pediatr 174:254–259

PubMed  Google Scholar 

Swallow V, Smith T, Webb NJA, Wirz L, Qizalbash L, Brennan E, Birch A, Sinha MD, Krischock L, van der Voort J, King D, Lambert H, Milford DV, Crowther L, Saleem M, Lunn A, Williams J (2015) Distributed expertise: qualitative study of a British network of multidisciplinary teams supporting parents of children with chronic kidney disease. Child Care Health Dev 41:67–75

PubMed  Google Scholar 

Dawson AE, Wilson CS, Smoyer WE, Pottanat N, Wilson AC, Mahan JD, LaMotte JE (2023) Psychosocial supports within pediatric nephrology practices: a pediatric nephrology research consortium survey. PLoS One 18:e0285126–e0285126

PubMed  PubMed Central  Google Scholar 

Chadban SJ, Ahn C, Axelrod DA, Foster BJ, Kasiske BL, Kher V, Kumar D, Oberbauer R, Pascual J, Pilmore HL, Rodrigue JR, Segev DL, Sheerin NS, Tinckam KJ, Wong G, Knoll GA (2020) KDIGO clinical practice guideline on the evaluation and management of candidates for kidney transplantation. Transplantation 104:S11–S103

PubMed  Google Scholar 

Brosig C, Pai A, Fairey E, Krempien J, McBride M, Lefkowitz DS (2014) Child and family adjustment following pediatric solid organ transplantation: factors to consider during the early years post-transplant. Pediatr Transplant 18:559–567

PubMed  Google Scholar 

Mäenpää H, Tainio J, Jalanko H, Arokoski J, Jahnukainen T (2022) Physical performance after pediatric solid organ transplantation. Pediatr Transplant 26:e14163

PubMed  Google Scholar 

Chaudhuri A, Goddard EA, Green M, Ardura MI (2021) Diarrhea in the pediatric solid organ transplantation recipient: a multidisciplinary approach to diagnosis and management. Pediatr Transplant 25:e13886

PubMed  Google Scholar 

Chan W, Jones D, Bosch JA, McPhee J, Crabtree N, McTernan PG, Kaur O, Inston N, Moore S, McClean A, Harper L, Phillips AC, Borrows R (2016) Cardiovascular, muscular and perceptual contributions to physical fatigue in prevalent kidney transplant recipients. Transpl Int 29:338–351

PubMed  Google Scholar 

Petersen I, Noelle J, Buchholz A, Kroencke S, Daseking M, Grabhorn E (2019) Fatigue in pediatric liver transplant recipients and its impact on their quality of life. Pediatr Transplant 23:e13331

PubMed  Google Scholar 

Anthony SJ, Hebert D, Todd L, Korus M, Langlois V, Pool R, Robinson LA, Williams A, Pollock-BarZiv SM (2010) Child and parental perspectives of multidimensional quality of life outcomes after kidney transplantation. Pediatr Transplant 14:249–256

PubMed  Google Scholar 

Uutela A, Qvist E, Holmberg C, Pihko H, Jalanko H (2009) Headache in children and adolescents after organ transplantation. Pediatr Transplant 13:565–570

PubMed  Google Scholar 

Bock ME, Wall L, Dobrec C, Chandran M, Goebel J (2021) Management of dyslipidemia in pediatric renal transplant recipients. Pediatr Nephrol 36:51–63

PubMed  Google Scholar 

Kaur K, Jun D, Grodstein E, Singer P, Castellanos L, Teperman L, Molmenti E, Fahmy A, Frank R, Infante L, Sethna CB (2018) Outcomes of underweight, overweight, and obese pediatric kidney transplant recipients. Pediatr Nephrol 33:2353–2362

PubMed  Google Scholar 

Zangla E, Mahajan R, Jiang Z, Kizilbash SJ (2024) Lipid abnormalities in pediatric kidney transplant recipients on steroid withdrawal maintenance immunosuppression. Pediatr Nephrol 39:261–268

PubMed  Google Scholar 

Stabouli S, Polderman N, Nelms CL, Paglialonga F, Oosterveld MJS, Greenbaum LA, Warady BA, Anderson C, Haffner D, Desloovere A, Qizalbash L, Renken-Terhaerdt J, Tuokkola J, Walle JV, Shaw V, Mitsnefes M, Shroff R (2022) Assessment and management of obesity and metabolic syndrome in children with CKD stages 2–5 on dialysis and after kidney transplantation—clinical practice recommendations from the Pediatric Renal Nutrition Taskforce. Pediatr Nephrol 37:1–20

PubMed  Google Scholar 

Cameron C, Krmar RT (2016) Single-center assessment of nutritional counseling in preventing excessive weight gain in pediatric renal transplants recipients. Pediatr Transplant 20:388–394

PubMed  Google Scholar 

Amatya K, Monnin K, Steinberg Christofferson E (2021) Psychological functioning and psychosocial issues in pediatric kidney transplant recipients. Pediatr Transplant 25:e13842

PubMed  Google Scholar 

Kogon AJ, Matheson MB, Flynn JT, Gerson AC, Warady BA, Furth SL, Hooper SR, Chronic Kidney Disease in Children (CKiD) Study Group (2016) Depressive symptoms in children with chronic kidney disease. J Pediatr 168:164-170.e161

PubMed  Google Scholar 

Bakr A, Amr M, Sarhan A, Hammad A, Ragab M, El-Refaey A, El-Mougy A (2007) Psychiatric disorders in children with chronic renal failure. Pediatr Nephrol 22:128–131

PubMed  Google Scholar 

West S, Kenedi C (2014) Strategies to prevent the neuropsychiatric side-effects of corticosteroids: a case report and review of the literature. Curr Opin Organ Transplant 19:201–208

PubMed  Google Scholar 

Anghel D, Tanasescu R, Campeanu A, Lupescu I, Podda G, Bajenaru O (2013) Neurotoxicity of immunosuppressive therapies in organ transplantation. Maedica 8:170–175

PubMed  PubMed Central  Google Scholar 

Duncan-Park S, Danziger-Isakov L, Armstrong B, Williams N, Odim J, Shemesh E, Sweet S, Annunziato R (2022) Posttraumatic stress and medication adherence in pediatric transplant recipients. Am J Transplant 22:937–946

PubMed  Google Scholar 

Price J, Kassam-Adams N, Alderfer MA, Christofferson J, Kazak AE (2016) Systematic review: a reevaluation and update of the integrative (trajectory) model of pediatric medical traumatic stress. J Pediatr Psychol 41:86–97

PubMed  Google Scholar 

Turner EM, Cassidy AR, Rea KE, Smith-Paine JM, Wolfe KR (2023) The multifaceted role of neuropsychology in pediatric solid organ transplant: preliminary guidelines and strategies for clinical practice. Child Neuropsychol 30:503–537

PubMed  Google Scholar 

Prado CE, Crowe SF (2019) Corticosteroids and cognition: a meta-analysis. Neuropsychol Rev 29:288–312

PubMed  Google Scholar 

Johnson RJ, Warady BA (2013) Long-term neurocognitive outcomes of patients with end-stage renal disease during infancy. Pediatr Nephrol 28:1283–1291

PubMed  Google Scholar 

Glad D, Anzalone C, Kane-Grade F, Gu L, Evans M, Kizilbash S (2024) Neurodevelopmental profile of infants and toddlers awaiting a kidney transplant. Pediatr Nephrol 39:2187–2197

PubMed  Google Scholar 

Ruebner RL, Laney N, Kim JY, Hartung EA, Hooper SR, Radcliffe J, Furth SL (2016) Neurocognitive dysfunction in children, adolescents, and young adults with CKD. Am J Kidney Dis 67:567–575

PubMed  Google Scholar 

Duquette PJ, Gipson DS, Hooper SR (2022) Differential attention functioning in pediatric chronic kidney disease. Front Hum Neurosci 16:897131–897131

PubMed  PubMed Central  Google Scholar 

Chen K, Didsbury M, van Zwieten A, Howell M, Kim S, Tong A, Howard K, Nassar N, Barton B, Lah S, Lorenzo J, Strippoli G, Palmer S, Teixeira-Pinto A, Mackie F, McTaggart S, Walker A, Kara T, Craig JC, Wong G (2018) Neurocognitive and educational outcomes in children and adolescents with CKD: a systematic review and meta-analysis. Clin J Am Soc Nephrol 13:387–397

PubMed  PubMed Central  Google Scholar 

Anghel D, Tanasescu R, Campeanu A, Lupescu I, Podda G, Bajenaru O (2013) Neurotoxicity of immunosuppressive therapies in organ transplantation. Mædica 8:170–175

PubMed  PubMed Central  Google Scholar 

Haavisto A, Korkman M, Holmberg C, Jalanko H, Qvist E (2012) Neuropsychological profile of children with kidney transplants. Nephrol Dial Transplant 27:2594–2601

PubMed  Google Scholar 

Thys K, Schwering KL, Siebelink M, Dobbels F, Borry P, Schotsmans P, Aujoulat I (2015) Psychosocial impact of pediatric living-donor kidney and liver transplantation on recipients, donors, and the family: a systematic review. Transpl Int 28:270–280

PubMed  Google Scholar 

Dunbar JC, Bascom E, Pratt W, Snyder J, Smith JM, Pollack AH (2022) My kidney identity: contextualizing pediatric patients and their families kidney transplant journeys. Pediatr Transplant 26:e14343

PubMed  PubMed Central  Google Scholar 

Leblond M, Achille M, Clermont MJ, Blydt-Hansen T (2020) Becoming unique: a qualitative study of identity development of adolescent kidney recipients. Pediatr Transplant 24:e13607

PubMed  Google Scholar 

Cousino MK, Rea KE, Schumacher KR, Magee JC, Fredericks EM (2017) A systematic review of parent and family functioning in pediatric solid organ transplant populations. Pediatr Transplant 21(3). https://doi.org/10.1111/petr.12900

Kaller T, Petersen I, Petermann F, Fischer L, Grabhorn E, Schulz KH (2014) Family strain and its relation to psychosocial dysfunction in children and adolescents after liver transplantation. Pediatr Transplant 18:851–859

PubMed  Google Scholar 

Lerret SM, Weiss ME, Stendahl GL, Chapman S, Menendez J, Williams L, Nadler ML, Neighbors K, Amsden K, Cao Y, Nugent M, Alonso EM, Simpson P (2015) Pediatric solid organ transplant recipients: transition to home and chronic illness care. Pediatr Transplant 19:118–129

PubMed  Google Scholar 

Gerson AC, Furth SL, Neu AM, Fivush BA (2004) Assessing associations between medication adherence and potentially modifiable psychosocial variables in pediatric kidney transplant recipients and their families. Pediatr Transplant 8:543–550

PubMed  Google Scholar 

Forner-Puntonet M, Gisbert-Gustemps L, Castell-Panisello E, Larrarte M, Quintero J, Ariceta G, Gran F, Iglesias-Serrano I, Garcia-Morán A, Español-Martín G, Ibañez-Jimenez P, Ramos-Quiroga JA (2023) Stress and coping strategies of families of pediatric solid organ transplant recipients in times of pandemic. Front Psychol 14:1067477–1067477

PubMed  PubMed Central  Google Scholar 

Guilfoyle SM, Goebel JW, Pai ALH (2011) Efficacy and flexibility impact perceived adherence barriers in pediatric kidney post-transplantation. Fam Syst Health 29:44–54

PubMed  Google Scholar 

Simons LE, Blount RL (2007) Identifying barriers to medication adherence in adolescent transplant recipients. J Pediatr Psychol 32:831–844

PubMed