Wolff JL, Freedman VA, Mulcahy JF, Kasper JD. Family Caregivers’ Experiences with Health Care Workers in the Care of Older Adults with Activity Limitations. JAMA Netw Open. 2020;3(1). http://dx.doi.org/10.1001/jamanetworkopen.2019.19866

Sabo K, Chin E. Self-care needs and practices for the older adult caregiver: An integrative review. Geriatr Nurs (Minneap). 2021;42(2):570–581. http://dx.doi.org/10.1016/j.gerinurse.2020.10.013

Maguire R, Maguire P. Caregiver Burden in Multiple Sclerosis: Recent Trends and Future Directions. Curr. Neurol. Neurosci. Rep. 2020;20(7). http://dx.doi.org/10.1007/s11910-020-01043-5

Yang GM, Hui-Shan Neo S, Teo I, et al. Exploring the Score Equivalence of the English and Chinese Versions of the Brief Assessment Scale for Caregivers. J Patient Exp. 2020;7(2):200–207. http://dx.doi.org/10.1177/2374373519836477

Lima AGT, Sales CC da S, Serafim WF de L. Burden, depression and anxiety in primary caregivers of children and adolescents in renal replacement therapy. J Bras Nefrol. 2019;41(3):356–363. http://dx.doi.org/10.1590/2175-8239-JBN-2018-0039

Walker L, Avant K. Strategies for theory construction in nursing. 6th ed. Nova York: Pearson, 2019.

Meleis AI. Strategies for Concept Development. In Meleis, AI: Theoretical nursing: Development and progress. 5th ed. Wolters Kluwer, 2018.

Mcewen M, Wills EM. Bases teóricas de enfermagem. 4th ed. Porto Alegre: Artmed.

Borges BEC. Desenvolvimento de uma Teoria de Médio Alcance de Enfermagem para a Tensão do papel de cuidador. [Dissertação de mestrado]. Brasil: Universidade Federal do Rio Grande do Norte, DEpartamento de Enfermagem, 2023. https://repositorio.ufrn.br/handle/123456789/52070

Choi S, Seo JY. Analysis of caregiver burden in palliative care: An integrated review. Nurs Forum. 2019;54(2):280–290. http://dx.doi.org/10.1111/nuf.12328

Peters MDJ, Godfrey C, McInerney P, Munn Z, Tricco AC, Khalil H. Chapter 11: Scoping Reviews (2020 version). In: Aromataris E, Munn Z (Editors). JBI Reviewer´s Maual. 2020. https://doi.org/10.46658/JBIMES-20-12

Borges BEC, Dantas AC, Lima JPM de, Silva CLB da, Fernandes MI da CD, Vitor AF. Análise do conceito tensão do papel de cuidador: uma abordagem segundo Meleis. 2024. Mendeley Data, V2. https:/doi.org/10.17632/ynz74ch88k.2

Polit D, Beck C. Lippincott Course Point Enhanced for Polit’s Essentials of Nursing Research. 10th ed. Wolters Kluwer Health, 2021.

García-Torres F, Jabłoński MJ, Gómez Solís Á, Jaén-Moreno MJ, Gálvez-Lara M, Moriana JA, et al. Caregiver burden domains and their relationship with anxiety and depression in the first six months of cancer diagnosis. Int J Environ Res Public Health. 2020;17(11):1–10. http://dx.doi.org/10.3390/ijerph17114101

Hamad EO, AlHadi AN, Tremblay PF, Savundranayagam MY, Kinsella EA, Holmes JD, et al. Reconstruction of a Caregiver Burden Scale: Identifying Culturally Sensitive Items in Saudi Arabia. Canadian Journal on Aging. 2018;37(2):218–233. http://dx.doi.org/10.1017/S071498081800003X

Rafati F, Mashayekhi F, Dastyar N. Caregiver Burden and Spiritual Well-being in Caregivers of Hemodialysis Patients. J Relig Health. 2020;59(6):3084–3096. https://doi.org/10.1007/s10943-019-00939-y

Dwyer JW, Miller MK. Determinants of Primary Caregiver Stress and Burden: Area of Residence and the Caregiving Networks of Frail Elders. J Rural Heal. 990;6(2):161–184. http://dx.doi.org/10.1111/j.1748-0361.1990.tb00197.x

Aung TNN, Aung MN, Moolphate S, Koyanagi Y, Supakankunti S, Yuasa M. Caregiver burden and associated factors for the respite care needs among the family caregivers of community dwelling senior citizens in Chiang Mai, Northern Thailand. Int J Environ Res Public Health. 2021;18(11). http://dx.doi.org/10.3390/ijerph18115873

Chow AYM, Fordjour GA, Jiao K, Jung N, Chan IKN, Kuok CN. Redefining caregiver strain for family caregivers in end-of-life care in Hong Kong. Palliat Support Care. 2024;103(8). http://dx.doi.org/10.1017/S1478951523000020

Vázquez FL, Otero P, Simón MA, Bueno AM, Blanco V. Psychometric properties of the Spanish version of the caregiver burden inventory. Int J Environ Res Public Health. 2019;16(2):217. http://dx.doi.org/10.3390/ijerph16020217

Cham CQ, Ibrahim N, Siau CS, Kalaman CR, Ho MC, Yahya AN, et al. Caregiver Burden among Caregivers of Patients with Mental Illness: A Systematic Review and Meta-Analysis. Healthc. 2022;10(12). http://dx.doi.org/10.3390/healthcare10122423

Hvalič-Touzery S, Trkman M, Dolničar V. Caregiving Situation as a Predictor of Subjective Caregiver Burden: Informal Caregivers of Older Adults during the COVID-19 Pandemic. Int J Environ Res Public Health. 2022;19(21):14496. http://dx.doi.org/10.3390/ijerph192114496

La IS, Johantgen M, Storr CL, Zhu S, Cagle JG, Ross A. Caregiver burden and related factors during active cancer treatment: A latent growth curve analysis. Eur J Oncol Nurs. 2021;52:101962. http://dx.doi.org/10.1016/j.ejon.2021.101962

Valer DB, Aires M, Fengler FL, Paskulin LMG. Adaptation and validation of the caregiver burden inventory for use with caregivers of elderly individuals. Rev Lat Am Enfermagem. 2015;23(1):130–138. http://dx.doi.org/10.1590/0104-1169.3357.2534

Okonkwo UP, Agbo CF, Ibeneme SC, Igwe ES, Akosile CO, Onwuakagba IU, et al. The Burden and Quality of life of Caregivers of Stroke Survivors with Cognitive Impairment in Selected Healthcare Facilities in Anambra State, Nigeria. Gerontol Geriatr Med. 2022;8. http://dx.doi.org/10.1177/23337214221126329

Chou KR. Caregiver burden: A concept analysis. J Pediatr Nurs. 2000;15(6):398–407. http://dx.doi.org/10.1053/jpdn.2000.16709

Siddiqui S, Khalid J. Determining the caregivers’ burden in caregivers of patients with mental illness. Pakistan J Med Sci. 2019;35(5):1329–1333. http://dx.doi.org/10.12669/pjms.35.5.720

Zhu W, Jiang Y. Determinants of caregiver burden of patients with haemorrhagic stroke in China. Int J Nurs Pract. 2019;25(2):e12719. http://dx.doi.org/10.1111/ijn.12719

Schischlevskij P, Cordts I, Günther R, Stolte B, Zeller D, Schröter C, et al. Informal caregiving in amyotrophic lateral sclerosis (Als): A high caregiver burden and drastic consequences on caregivers’ lives. Brain Sci 2021;11(6):748. http://dx.doi.org/10.3390/brainsci11060748

Tamizi Z, Fallahi-Khoshknab M, Dalvandi A, Mohammadi-Shahboulaghi F, Mohammadi E, Bakhshi E. Caregiving burden in family caregivers of patients with schizophrenia: A qualitative study. J Educ Health Promot. 2020;9(1):12. http://dx.doi.org/10.4103/jehp.jehp_356_19

Steinsheim G, Malmedal W, Follestad T, Olsen B, Saga S. Factors associated with subjective burden among informal caregivers of home-dwelling people with dementia: a cross-sectional study. BMC Geriatr. 2023;23(1):644. http://dx.doi.org/10.1186/s12877-023-04358-3

Daly C, Ruane P, O’Reilly K, Longworth L, Vega-Hernandez G. Caregiver burden in cystic fibrosis: a systematic literature review. Ther. Adv. Respir. Dis. 2022;16. http://dx.doi.org/10.1177/17534666221086416

Rajovic T, Todorovic N, Vracevic M, Rajovic N, Pavlovic A, Pavlovic V, et al. From burden to depressive symptoms in informal caregivers during the covid-19 pandemic: A path analysis. Int J Environ Res Public Health. 2021;18(18):9577. http://dx.doi.org/10.3390/ijerph18189577

Cao LL, Tang YF, Xia YQ, Wei JH, Li GR, Mu XM, et al. A survey of caregiver burden for stroke survivors in non-teaching hospitals in Western China. Med (United States). 2022;101(50):e31153. http://dx.doi.org/10.1097/MD.0000000000031153

Kavga A, Kalemikerakis I, Faros A, Milaka M, Tsekoura D, Skoulatou M, et al. The effects of patients’ and caregivers’ characteristics on the burden of families caring for stroke survivors. Int J Environ Res Public Health. 2021;18(14):7298. http://dx.doi.org/10.3390/ijerph18147298

Ruisoto P, Ramírez M, Paladines-Costa B, Vaca S, Clemente-Suárez VJ. Predicting caregiver burden in informal caregivers for the elderly in ecuador. Int J Environ Res Public Health. 2020;17(19):7338. http://dx.doi.org/10.3390/ijerph17197338

Kate N, Grover S, Kulhara P, Nehra R. Relationship of caregiver burden with coping strategies, social support, psychological morbidity, and quality of life in the caregivers of schizophrenia. Asian J Psychiatr. 2013;6(5):380–388. http://dx.doi.org/10.1016/j.ajp.2013.03.014

Mital A, Sabnis S, Kulkarni V. Caregiver burden in medical versus psychiatric patients: A cross-sectional comparative study. Indian J Psychol Med. 2017;39(6):777–784. http://dx.doi.org/10.4103/ijpsym.ijpsym_335_17

Gérain P, Zech E. Informal Caregiver burnout? Development of a theoretical framework to understand the impact of caregiving. Front Psychol. 2019;10:1748. http://dx.doi.org/10.3389/fpsyg.2019.01748

Woodrell CD, Mitra A, Hamilton A, Hansen L. Burden, Quality of Life, and Palliative Care for Family Caregivers of Individuals with Advanced Liver Disease: a Systematic Literature Review. Curr Hepatol Reports. 2021;20(4):198–212. http://dx.doi.org/10.1007/s11901-021-00575-9

Secinti E, Fischer IC, Brennan EA, Christon L, Balliet W. The efficacy of psychosocial interventions for cancer caregiver burden: A systematic review and meta-analysis of randomized controlled trials. Clin. Psychol. Rev. 2023;99:102237. http://dx.doi.org/10.1016/j.cpr.2022.102237

Calhoun PS, Beckham JC, Bosworth HB. Caregiver burden and psychological distress in partners of veterans with chronic posttraumatic stress disorder. J Trauma Stress. 2002;15(3):205–212. http://dx.doi.org/10.1023/A:1015251210928

Scazufca M, Menezes PR, Almeida OP. Caregiver burden in an elderly population with depression in São Paulo, Brazil. Soc Psychiatry Psychiatr Epidemiol. 2002;37(9):416–422. http://dx.doi.org/10.1007/s00127-002-0571-6

Leiknes I, Lien U-T, Severinsson E. The Relationship among Caregiver Burden, Demographic Variables, and the Clinical Characteristics of Patients with Parkinson’s Disease—A Systematic Review of Studies Using Various Caregiver Burden Instruments. Open J Nurs. 2015;05(10):855–877. http://dx.doi.org/10.4236/ojn.2015.510091

Jeong YG, Myong JP, Koo JW. The modifying role of caregiver burden on predictors of quality of life of caregivers of hospitalized chronic stroke patients. Disabil Health J. 2015;8(4):619–625. http://dx.doi.org/10.1016/j.dhjo.2015.05.005

Brannan AM, Heflinger CA. Distinguishing Caregiver Strain from Psychological Distress: Modeling the Relationships Among Child, Family, and Caregiver Variables. Journal of Child and Family Studies. 2001;10(4):405-418. http://dx.doi.org/10.1023/a:1016705306848

Schene AH, Tessler RC, Gamache GM. Instruments measuring family or caregiver burden in severe mental illness. Soc Psychiatry Psychiatr Epidemiol. 1994;29(5):228–240. http://dx.doi.org/10.1007/bf00796381

Diameta E, Adandom I, Jumbo SU, Nwankwo HC, Obi PC, Kalu ME. The Burden Experience of Formal and Informal Caregivers of Older Adults With Hip Fracture in Nigeria. SAGE Open Nurs. 2018;4. http://dx.doi.org/10.1177/2377960818785155

Kruithof WJ, Post MWM, Mierlo ML van, Bos GAM van den, Man-van Ginkel JM de, Visser-Meily JMA. Caregiver burden and emotional problems in partners of stroke patients at two months and one year post-stroke: Determinants and prediction. Patient Educ Couns. 2016;99(10):1632–1640. http://dx.doi.org/10.1016/j.pec.2016.04.007

Shattnawi KK, Al Ali N, Almanasreh AA, Al-Motlaq MA. Caregiver burden among parents of children with chronic diseases: A cross-sectional study. J Clin Nurs. 2023;32(17–18):6485–6493. http://dx.doi.org/10.1111/jocn.16672

Jones SL. The Association Between Objective and Subjective Caregiver Burden. Arch Psychiatr Nurs. 1996;10(2):77–84. http://dx.doi.org/10.1016/s0883-9417(96)80070-7

Sharifi M, Younesi SJ, Foroughan M, Safi MH, Khanjani MS. The Challenges of Caring for an Adult Child with Schizophrenia in the Family: An Analysis of the Lived Experiences of Older Parents. Inq (United States). 2023;60. http://dx.doi.org/10.1177/00469580221148867

Zhang Y, Zhang S, Liu C, Chen X, Ding Y, Guan C, et al. Caregiver burden among family caregivers of patients with advanced cancer in a palliative context: A mixed-method study. J Clin Nurs. 2023;32(21–22):7751–7764. http://dx.doi.org/10.1111/jocn.16872

Mirhosseini S, Grimwood S, Basirinezhad MH, Montazeri R, Ebrahimi H. Psychological distress as a predictor of the burden of care in family caregivers of COVID-19 patients in Iran: A community-based cross-sectional study. Heal Sci Reports. 2022;5(6):e942. http://dx.doi.org/10.1002/hsr2.942

Gater A, Rofail D, Tolley C, Marshall C, Abetz-Webb L, Zarit SH, et al. “Sometimes It’s Difficult to Have a Normal Life”: Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia. Schizophr Res Treatment. 2014;2014:1–13. http://dx.doi.org/10.1155/2014/368215

Maple M, Wayland S, Sanford RL, Bhullar N. Predictors of Caregiver Burden Among Carers of Suicide Attempt Survivors. Crisis. 2023;44(1):41–48. http://dx.doi.org/10.1027/0227-5910/a000836

Johansson H, Berterö C, Jonasson LL, Berg K. The experience of caregiver burden when being next of kin to a person with severe chronic obstructive pulmonary disease: A qualitative study. Chron Respir Dis. 2023;20. http://dx.doi.org/10.1177/14799731231168897

Mendez-Luck CA, Kennedy DP, Wallace SP. Concepts of burden in giving care to older relatives: A study of female caregivers in a Mexico City neighborhood. J Cross Cult Gerontol. 2008;23(3):265–282. http://dx.doi.org/10.1007/s10823-008-9058-6

Holaday B, Chou KR. A Psychometric Assessment of Caregiver Burden: A Cross-Cultural Study. 1997;12(6):352–362. http://dx.doi.org/10.1016/s0882-5963(97)80065-6

Grov EK, Fosså SD, Sørebø Ø, Dahl AA. Primary caregivers of cancer patients in the palliative phase: A path analysis of variables influencing their burden. Soc Sci Med. 2006;63(9):2429–2439. http://dx.doi.org/10.1016/j.socscimed.2006.06.008

Cifu DX, Carne W, Brown R, Pegg F, Ong J, Qutubuddin A, et al Caregiver distress in parkinsonism. J Rehabil Res Dev. 2006; 43(4):499–508. http://dx.doi.org/10.1682/jrrd.2005.08.1365

Lai DWL. Effect of financial costs on caregiving burden of family caregivers of older adults. SAGE Open. 2012;2(4). http://dx.doi.org/10.1177/2158244012470467

Chien WT, Chan SW, Morrissey J. The perceived burden among Chinese family caregivers of people with schizophrenia. J Clin Nurs. 2007; 16(6):1151-1161. http://dx.doi.org/10.1111/j.1365-2702.2007.01501.x

Morgan SP, Lengacher CA, Rodriguez CS. Caregiver burden in caregivers of patients with advanced stage cancer: A concept analysis. Eur J Oncol Nurs. 2022;60. http://dx.doi.org/10.1016/j.ejon.2022.102152

Schlomann A, Schacke C, Leipold B, Zank S. Berlin Inventory of Caregiver Stress - Dementia (BICS-D). Gerontologist. 2021;61(5):e173–e184. http://dx.doi.org/10.1093/geront/gnz195

Fenton ATHR, Keating NL, Ornstein KA, Kent EE, Litzelman K, Rowland JH, et al. Comparing adult-child and spousal caregiver burden and potential contributors. Cancer. 2022;128(10):2015–2024. http://doi.org/10.1002/cncr.34164

Tough H, Brinkhof MWG, Fekete C. Untangling the role of social relationships in the association between caregiver burden and caregiver health: an observational study exploring three coping models of the stress process paradigm. BMC Public Health. 2022;22(1). http://dx.doi.org/10.1186/s12889-022-14127-3

del-Pino-Casado R, Frías-Osuna A, Palomino-Moral PA, Ruzafa-Martínez M, Ramos-Morcillo AJ. Social support and subjective burden in caregivers of adults and older adults: A meta-analysis. PLoS One. 2018;13(1):e0189874. http://dx.doi.org/10.1371/journal.pone.0189874

Brandt M, Johannsen L, Inhestern L, Bergelt C. Parents as informal caregivers of children and adolescents with spinal muscular atrophy: a systematic review of quantitative and qualitative data on the psychosocial situation, caregiver burden, and family needs. Orphanet J. Rare Dis. 2022;17(1):274. http://dx.doi.org/10.1186/s13023-022-02407-5

Oberdhan D, Palsgrove AC, Cole JC, Harris T. Caregiver Burden of Autosomal Dominant Polycystic Kidney Disease: A Qualitative Study. Kidney Med. 2023;5(2). http://dx.doi.org/10.1016/j.xkme.2022.100587

Iacob CI, Avram E, Burtaverde V. Psychometric properties of the Kingston Caregiver Stress Scale in Romanian caregivers of children and adults with disabilities. Res Dev Disabil. 2021;112. http://dx.doi.org/10.1016/j.ridd.2021.103921

Hejazi SS, Hosseini M, Ebadi A, Alavi Majd H. Development and psychometric properties evaluation of caregiver burden questionnaire in family caregivers of hemodialysis patients. BMC Nurs. 2022;21(1):246. http://dx.doi.org/10.1186/s12912-022-01025-7

Yuen EYN, Wilson CJ. The Relationship between Cancer Caregiver Burden and Psychological Outcomes: The Moderating Role of Social Connectedness. Curr Oncol. 2022;29(1):14–26. http://dx.doi.org/10.3390/curroncol29010002

Guo M, Gao G, Guo J, Wen L, Zeng L. Burden among caregivers for children with asthma: A mixed-method study in Guangzhou, China. Int J Nurs Sci. 2015;2(4):394–401. http://dx.doi.org/10.1016/j.ijnss.2015.10.004

Guerriere D, Husain A, Zagorski B, Marshall D, Seow H, Brazil K, et al. Predictors of caregiver burden across the home-based palliative care trajectory in Ontario, Canada. Health Soc Care Community. 2016;24(4):428–438. https://doi.org/10.1111/hsc.12219

del-Pino-Casado R, Priego-Cubero E, López-Martínez C, Orgeta V. Subjective caregiver burden and anxiety in informal caregivers: A systematic review and meta-analysis. PLoS One. 2021;16(3):e0247143. http://dx.doi.org/10.1371/journal.pone.0247143

Simón MA, Bueno AM, Otero P, Blanco V, Vázquez FL. Caregiver burden and sleep quality in dependent people’s family caregivers. J Clin Med. 2019;8(7). http://dx.doi.org/10.3390/jcm8071072

John R, Hennessy CH, Dyeson TB, Garrett MD. Toward the Conceptualization and Measurement of Caregiver Burden Among Pueblo Indian Family Caregivers. em>The Gerontologist. 2001;41(2):210–219. http://dx.doi.org/10.1093/geront/41.2.210

Cousins R, Davies ADM, Turnbull CJ, Playfer JR. Assessing caregiving distress: A conceptual analysis and a brief scale. Br J Clin Psychol. 2002;41(4):387–403. http://dx.doi.org/10.1348/014466502760387506

Wright LM, Leahey M. Theoretical foundations of the calgary family assessment and intervention models. In: Shajani Z, Snell D, editors. A guide to family assessment and intervention. 7th ed. Philadelphia: F.A. Davis Company, 2019; p. 21–50.

Barker DH, Quittner AL. Parental depression and pancreatic enzymes adherence in children with cystic fibrosis. Pediatrics. 2016;137(2):e20152296. http://dx.doi.org/10.1542/peds.2015-2296