Li CK, Dalvi R, Yonemori K et al (2019) Care of adolescents and young adults with cancer in Asia: Results of an ESMO/SIOPE/SIOP Asia survey. ESMO Open 4:e000467. https://doi.org/10.1136/esmoopen-2018-000467

Article  PubMed  Google Scholar 

Hinkle J, Wiener L, Altschuler A et al (2023) What constitutes quality of life? Perspectives of adolescents and young adults with advanced cancer. J Natl Compr Canc Netw 21:1243–1250. https://doi.org/10.6004/jnccn.2023.7067

Article  PubMed  Google Scholar 

Lea S, Martins A, Bassett M et al (2018) Issues experienced and support provided to adolescents and young adults at the end of active treatment for cancer: A rapid review of the literature. Eur J Cancer Care 27:e12972. https://doi.org/10.1111/ecc.12972

Article  Google Scholar 

Burgers VWG, van den Bent MJ, Darlington AE et al (2022) A qualitative study on the challenges health care professionals face when caring for adolescents and young adults with an uncertain and/or poor cancer prognosis. ESMO Open 7:100476. https://doi.org/10.1016/j.esmoop.2022.100476

Article  CAS  PubMed  Google Scholar 

Neves MC, Bártolo A, Prins JB, Sales CMD, Monteiro S (2023) Taking care of an adolescent and young adult cancer survivor: A systematic review of the impact of cancer on family caregivers. Int J Environ Res Public Health 20:5488. https://doi.org/10.3390/ijerph20085488

Article  PubMed  Google Scholar 

Reuvers MJP, Gedik A, Way KM et al (2023) Caring for adolescents and young adults (AYA) with cancer: A scoping review into caregiver burdens and needs. Cancers (Basel) 15:3263. https://doi.org/10.3390/cancers15123263

Article  PubMed  Google Scholar 

Feliciano DR, Reis-Pina P (2024) Enhancing end-of-life care with home-based palliative interventions: A systematic review. J Pain Symptom Manage. https://doi.org/10.1016/j.jpainsymman.2024.07.005

Article  PubMed  Google Scholar 

Kim Y-S, Han E, Lee J-W, Kang H-T (2022) Cost-effectiveness analysis of home-based hospice-palliative care for terminal cancer patients. J Hosp Palliat Care 25:76–84. https://doi.org/10.14475/jhpc.2022.25.2.76

Article  PubMed  Google Scholar 

Zare M-S, Feizi A (2024) Predicting place of death of patients with advanced cancer receiving home-based palliative care services in Iran. BMC Palliat Care 23:220. https://doi.org/10.1186/s12904-024-01550-z

Article  PubMed  Google Scholar 

Cai J, Zhang L, Guerriere D, Fan H, Coyte PC (2020) Where do cancer patients in receipt of home-based palliative care prefer to die and what are the determinants of a preference for a home death? Int J Environ Res Public Health 18:235. https://doi.org/10.3390/ijerph18010235

Article  PubMed  Google Scholar 

Odejide OO, Fisher L, Kushi LH et al (2022) Patient, family, and clinician perspectives on location of death for adolescents and young adults with cancer. JCO Oncol Pract 18:e1621–e1629. https://doi.org/10.1200/OP.22.00143

Article  PubMed  Google Scholar 

Fukui S, Yoshiuchi K, Fujita J, Sawai M, Watanabe M (2011) Japanese people’s preference for place of end-of-life care and death: A population-based nationwide survey. J Pain Symptom Manag 42:882–892. https://doi.org/10.1016/j.jpainsymman.2011.02.024

Article  Google Scholar 

Blais S, Cohen-Gogo S, Gouache E et al (2022) End-of-life care in children and adolescents with cancer: Perspectives from a French pediatric oncology care network. Tumori 108:223–229. https://doi.org/10.1177/03008916211013384

Article  PubMed  Google Scholar 

Jewitt N, Rapoport A, Gupta A et al (2023) The effect of specialized palliative care on end-of-life care intensity in AYAs with cancer. J Pain Symptom Manag 65:222–232. https://doi.org/10.1016/j.jpainsymman.2022.11.013

Article  Google Scholar 

Roeland EJ, Lindley LC, Gilbertson-White S et al (2020) End-of-life care among adolescent and young adult patients with cancer living in poverty. Cancer 126:886–893. https://doi.org/10.1002/cncr.32609

Article  PubMed  Google Scholar 

Sansom-Daly UM, Wakefield CE, Patterson P et al (2020) End-of-life communication needs for adolescents and young adults with cancer: Recommendations for research and practice. J Adolesc Young Adult Oncol 9:157–165. https://doi.org/10.1089/jayao.2019.0084

Article  PubMed  Google Scholar 

Mack JW, Fisher L, Kushi L et al (2021) Patient, family, and clinician perspectives on end-of-life care quality domains and candidate indicators for adolescents and young adults with cancer. JAMA Netw Open 4:e2121888. https://doi.org/10.1001/jamanetworkopen.2021.21888

Article  PubMed  Google Scholar 

Hamano J, Takeuchi A, Mori M et al (2023) Comparison of survival times of advanced cancer patients with palliative care at home and in hospital. PLoS ONE 18:e0284147. https://doi.org/10.1371/journal.pone.0284147

Article  CAS  PubMed  Google Scholar 

Given BA, Given CW, Sherwood P (2012) The challenge of quality cancer care for family caregivers. Semin Oncol Nurs 28:205–212. https://doi.org/10.1016/j.soncn.2012.09.002

Article  PubMed  Google Scholar 

Hirano H, Shimizu C, Kawachi A et al (2019) Preferences regarding end-of-life care among adolescents and young adults with cancer: Results from a comprehensive multicenter survey in Japan. J Pain Symptom Manag 58:235-243.e1. https://doi.org/10.1016/j.jpainsymman.2019.04.033

Article  Google Scholar 

Nakata K, Hiyama E, Katanoda K et al (2022) Cancer in adolescents and young adults in Japan: Epidemiology and cancer strategy. Int J Clin Oncol 27:7–15. https://doi.org/10.1007/s10147-021-02064-x

Article  PubMed  Google Scholar 

Ishiki H, Hirayama T, Horiguchi S et al (2022) A support system for adolescent and young adult patients with cancer at a Comprehensive Cancer Center. JMA J5:44–54

Google Scholar 

Zadeh S, Pao M, Wiener L (2015) Opening end-of-life discussions: How to introduce Voicing My CHOiCES™, an advance care planning guide for adolescents and young adults. Palliat Support Care 13:591–599. https://doi.org/10.1017/S1478951514000054

Article  PubMed  Google Scholar