Baudelet M, Van den Steen L, Tomassen P et al (2019) Very late xerostomia, dysphagia, and neck fibrosis after head and neck radiotherapy. Head Neck 41(10):3594–3603. https://doi.org/10.1002/hed.25880

Article  PubMed  Google Scholar 

Devins GM, Payne AYM, Lebel S et al (2013) The burden of stress in head and neck cancer. Psychooncology 22(3):668–676. https://doi.org/10.1002/pon.3050

Article  PubMed  Google Scholar 

Bjordal K, Ahlner-Elmqvist M, Hammerlid E et al (2001) A prospective study of quality of life in head and neck cancer patients. Part II: Longitudinal Data Laryngoscope 111(8):1440–1452. https://doi.org/10.1097/00005537-200108000-00022

Article  PubMed  CAS  Google Scholar 

Tsan YH, Wung SH, Lin MW, Lo WL, Wang YJ (2021) Predictors of quality of life change in head-and-neck cancer survivors during concurrent chemoradiotherapy: a prospective study. Asia Pac J Oncol Nurs 8(3):237–245. https://doi.org/10.4103/2347-5625.311132

Article  PubMed  PubMed Central  Google Scholar 

Vermaire JA, Raaijmakers CPJ, Monninkhof EM, Verdonck-de Leeuw IM, Terhaard CHJ, Speksnijder CM (2022) Factors associated with masticatory function as measured with the Mixing Ability Test in patients with head and neck cancer before and after treatment: a prospective cohort study. Support Care Cancer 30(5):4429–4436. https://doi.org/10.1007/s00520-022-06867-0

Article  PubMed  PubMed Central  Google Scholar 

La Mantia I, Rossitto F, Andaloro C (2017) Quality of life in head and neck cancer: patients’ and family caregivers’ perceptions. Egypt J Ear, Nose, Throat Allied Sci 18(3):247–250. https://doi.org/10.1016/j.ejenta.2017.11.002

Article  Google Scholar 

Van Hof KS, Hoesseini A, Dorr MC et al (2022) Caregiver burden, psychological distress and quality of life among informal caregivers of patients with head and neck cancer: a longitudinal study. Int J Environ Res Public Health 19(23). https://doi.org/10.3390/ijerph192316304

Shiraz F, Rahtz E, Bhui K, Hutchison I, Korszun A (2014) Quality of life, psychological wellbeing and treatment needs of trauma and head and neck cancer patients. Br J Oral Maxillofac Surg 52(6):513–517. https://doi.org/10.1016/j.bjoms.2014.03.019

Article  PubMed  Google Scholar 

Babin E, Sigston E, Hitier M, Dehesdin D, Marie JP, Choussy O (2008) Quality of life in head and neck cancers patients: predictive factors, functional and psychosocial outcome. Eur Arch Otorhinolaryngol 265(3):265–270. https://doi.org/10.1007/s00405-007-0561-0

Article  PubMed  CAS  Google Scholar 

Bechel DL, Myers WA, Smith DG (2000) Does patient-centered care pay off? Jt Comm J Qual Improv 26(7):400–409. https://doi.org/10.1016/S1070-3241(00)26033-1

Article  PubMed  CAS  Google Scholar 

Rathert C, Williams ES, McCaughey D, Ishqaidef G (2015) Patient perceptions of patient-centred care: empirical test of a theoretical model. Health Expect 18(2):199–209. https://doi.org/10.1111/hex.12020

Article  PubMed  Google Scholar 

Anhang Price R, Elliott MN, Zaslavsky AM et al (2014) Examining the role of patient experience surveys in measuring health care quality. Med Care Res Rev 71(5):522–554. https://doi.org/10.1177/1077558714541480

Article  PubMed  PubMed Central  Google Scholar 

Seale C (2012) Researching Society and Culture. 3rd Revised edition. SAGE Publications Ltd

Badr H, Herbert K, Reckson B, Rainey H, Sallam A, Gupta V (2016) Unmet needs and relationship challenges of head and neck cancer patients and their spouses. J Psychosoc Oncol 34(4):336–346. https://doi.org/10.1080/07347332.2016.1195901

Article  PubMed  PubMed Central  Google Scholar 

Rosenthal DI, Nakashima T, KnudDaugaardBentzen J et al (2019) Low-dose vs. high-dose cisplatin: lessons learned from 59 chemoradiotherapy trials in head and neck cancer. Front Oncol 9:86. https://doi.org/10.3389/fonc.2019.00086

Article  Google Scholar 

Rivelli TG, Mak MP, Martins RE, da Costa e Silva VT, de Castro G (2015) Cisplatin based chemoradiation late toxicities in head and neck squamous cell carcinoma patients. Discov Med 20(108):57–66

van Rijn-Dekker MI, van den Bosch L, van den Hoek JGM et al (2020) Impact of sarcopenia on survival and late toxicity in head and neck cancer patients treated with radiotherapy. Radiother Oncol 147:103–110. https://doi.org/10.1016/j.radonc.2020.03.014

Article  PubMed  CAS  Google Scholar 

Bril SI, Al-Mamgani A, Chargi N et al (2022) The association of pretreatment low skeletal muscle mass with chemotherapy dose-limiting toxicity in patients with head and neck cancer undergoing primary chemoradiotherapy with high-dose cisplatin. Head Neck 44(1):189–200. https://doi.org/10.1002/hed.26919

Article  PubMed  Google Scholar 

Wendrich AW, Swartz JE, Bril SI et al (2017) Low skeletal muscle mass is a predictive factor for chemotherapy dose-limiting toxicity in patients with locally advanced head and neck cancer. Oral Oncol 71:26–33. https://doi.org/10.1016/j.oraloncology.2017.05.012

Article  PubMed  CAS  Google Scholar 

Zhuang B, Xiao S, Zhang L et al (2022) Association between body composition and survival in head and neck cancer patients undergoing radiotherapy. Head Neck 44(9):2046–2054. https://doi.org/10.1002/hed.27065

Article  PubMed  Google Scholar 

Chargi N, Bril S, Emmelot-Vonk M, de Bree R (2019) Sarcopenia is a prognostic factor for overall survival in elderly patients with head-and-neck cancer. Eur Arch Otorhinolaryngol 276(5):1475–1486. https://doi.org/10.1007/s00405-019-05361-4

Article  PubMed  PubMed Central  CAS  Google Scholar 

Bentahila R, Giraud P, Decazes P et al (2023) The impact of sarcopenia on survival and treatment tolerance in patients with head and neck cancer treated with chemoradiotherapy. Cancer Med 12(4):4170–4183. https://doi.org/10.1002/cam4.5278

Article  PubMed  Google Scholar 

Huang CH, Chen PR, Lue KH, Hsieh TC, Chou YF (2021) Evaluation of sarcopenia, frailty, and inflammation on adverse events and survival outcomes in patients with oral cavity squamous cell carcinoma under adjuvant chemoradiotherapy. J Pers Med 11(9). https://doi.org/10.3390/jpm11090936

Meerkerk CDA, Chargi N, de Jong PA, van den Bos F, de Bree R (2022) Low skeletal muscle mass predicts frailty in elderly head and neck cancer patients. Eur Arch Otorhinolaryngol 279(2):967–977. https://doi.org/10.1007/s00405-021-06835-0

Article  PubMed  CAS  Google Scholar 

Karsten RT, Al-Mamgani A, Bril SI et al (2019) Sarcopenia, a strong determinant for prolonged feeding tube dependency after chemoradiotherapy for head and neck cancer. Head Neck 41(11):4000–4008. https://doi.org/10.1002/hed.25938

Article  PubMed  Google Scholar 

Di BZ, Harkness E, Ernst E, Georgiou A, Kleijnen J (2001) Influence of context effects on health outcomes: a systematic review. The Lancet 357(9258):757–762. https://doi.org/10.1016/S0140-6736(00)04169-6

Article  Google Scholar 

van Overveld LFJ, Takes RP, Turan AS et al (2018) Needs and preferences of patients with head and neck cancer in integrated care. Clin Otolaryngol 43(2):553–561. https://doi.org/10.1111/coa.13021

Article  PubMed  Google Scholar 

El-Haddad C, Hegazi I, Hu W (2020) Understanding patient expectations of health care: a qualitative study. J Patient Exp 7(6):1724–1731. https://doi.org/10.1177/2374373520921692

Article  PubMed  PubMed Central  Google Scholar 

Colagiuri B, Zachariae R (2010) Patient expectancy and post-chemotherapy nausea: a meta-analysis. Ann Behav Med 40(1):3–14. https://doi.org/10.1007/s12160-010-9186-4

Article  PubMed  Google Scholar 

O’Brien BC, Harris IB, Beckman TJ, Reed DA, Cook DA (2014) Standards for reporting qualitative research: a synthesis of recommendations. Acad Med 89(9):1245–1251. https://doi.org/10.1097/ACM.0000000000000388

Article  PubMed  Google Scholar 

Schaeffers AWMA, Devriese LA, van Gils CH et al (2023) Low dose cisplatin weekly versus high dose cisplatin every three weeks in primary chemoradiotherapy in head and neck cancer patients with low skeletal muscle mass: The CISLOW-study protocol. PLoS One 18(11):e0294147. https://doi.org/10.1371/journal.pone.0294147

Article  PubMed  PubMed Central  CAS  Google Scholar 

Swartz JE, Pothen AJ, Wegner I et al (2016) Feasibility of using head and neck CT imaging to assess skeletal muscle mass in head and neck cancer patients. Oral Oncol 62:28–33. https://doi.org/10.1016/j.oraloncology.2016.09.006

Article  PubMed  Google Scholar 

Chargi N, Ansari E, Huiskamp LFJ, Bol G, de Bree R (2019) Agreement between skeletal muscle mass measurements using computed tomography imaging and magnetic resonance imaging in head and neck cancer patients. Oral Oncol 99:104341. https://doi.org/10.1016/j.oraloncology.2019.06.022